Relating to establishment of the Texas Rare Disease Advisory Council.
Bill overview
Relating to establishment of the Texas Rare Disease Advisory Council.
Reference notes
HB 3554 sources, status methodology and verification
Sources
- HB 3554 official legislative recordPrimary bill-status record.
- Current official bill textOfficial bill text or printing.
Methodology
KeepTXRed treats the official legislative record and latest official action as the factual status layer for HB 3554. Status labels are normalized for browsing, while the legislative timeline and documents preserve official action text and source links. Any KeepTXRed explanation below is editorial context and remains separate from the official record.
Last verified
Legislative record synchronized September 4, 2026 at 1:55 PM UTC; latest recorded official action May 15, 2025.
Bill → law → agency context
This relationship layer distinguishes what the normalized official record can prove from what it cannot. Enactment and effective dates come from the bill record. Agency names below are shown only when an official fiscal document supplies a verified agency reference; being cited in a fiscal note does not by itself prove that the agency administers the resulting law.
Official fiscal-note agency context
No verified agency references are available from the latest parsed official fiscal material. KeepTXRed does not infer an administering agency from the bill topic or title.
KeepTXRed explanation
This reviewed explanation is separate from the official bill record and is provided for general information, not legal advice.
KeepTXRed summary
HB 3554 was a House-passed proposal to establish a 23-member Texas Rare Disease Advisory Council to advise state leaders and health-care stakeholders on improving outcomes for Texans with rare diseases. The Senate did not pass it.
What would change
The proposal would have created a council representing state agencies, clinicians, researchers, patients, caregivers, insurers and industry; directed it to develop treatment, diagnosis, research and emergency-preparedness recommendations; and required annual public reports. Initial appointments were contemplated by December 1, 2025.
Who may be affected
Texans living with rare diseases and their caregivers, physicians and nurses, researchers, hospitals, insurers, biotechnology companies, DSHS, HHSC and other state agencies.
When it would take effect
HB 3554 did not take effect. The House passed it and sent it to the Senate, but the Senate did not pass the bill. The proposed effective date was September 1, 2025.
Limits and uncertainty
No Rare Disease Advisory Council was established through HB 3554. Rare-disease programs or advisory efforts created under other authority are separate from this failed proposal.
Editorial sources and review notes
Official House-engrossed text, analysis, and stages reviewed. House passed; Senate did not.
Editorial explanation reviewed 9/6/2026.
Current status
Passed
Received from the House
Latest official action
Received from the House
May 15, 2025 · house
Who this bill may affect
A verified audience or subject classification has not been attached to this bill yet.
Use the bill overview and official documents to determine whether the proposal may apply to you, your business, or a public agency.
Sponsors
Committee history
- Public Health
Out of committee
Legislative timeline
Received from the House
house · latest_action
Official recordReported engrossed
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Official recordStatement(s) of vote recorded in Journal
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Official recordRecord vote
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Official recordPassed
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Official recordRead 3rd time
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Official recordStatement(s) of vote recorded in Journal
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Official recordRecord vote
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Official recordPassed to engrossment
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Official recordRead 2nd time
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Official recordPlaced on General State Calendar
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Official recordConsidered in Calendars
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Official recordCommittee report sent to Calendars
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Official recordCommittee report distributed
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Official recordComte report filed with Committee Coordinator
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Official recordReported favorably w/o amendment(s)
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Official recordConsidered in formal meeting
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Official recordLeft pending in committee
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Official recordTestimony taken/registration(s) recorded in committee
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Official recordConsidered in public hearing
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Official recordScheduled for public hearing on . . .
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Official recordReferred to Public Health
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Official recordRead first time
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Official recordFiled
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Official record
Official bill text
Read source text published by the Texas Legislature. KeepTXRed fetches it only when you request it, converts the official HTML to inert text for display, and does not rewrite it with AI.
Related articles
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